Welcome To the First Annual Carter's Run for Dandy-Walker
Our first son Carter was born with Dandy-Walker Variant in 2008. To honor him and to raise awareness for Dandy-Walker,
we are holding a 5K Run/Walk and Family Fun Fest including a performance by the Great Zucchini!
The funds raised will help facilitate more research studies and trials in order to combat and hopefully successfully treat Dandy-Walker Syndrome and Dandy-Walker Variant.
To read more about current Dandy-Walker research studies, click here...
Download an 8.5" x 11" printable Carter's Run Race flyer
Download our Sponsor Level Flyer
About the
Dandy-Walker Alliance
The Dandy-Walker Alliance
is an all-inclusive organization comprised of individuals directly and indirectly affected by Dandy-Walker sharing a collective interest in educational, informational activities and supporting non-partisan research to increase public awareness of the congenital birth defect Dandy-Walker.
We support all efforts to determine the cause(s), find the cure and to ameliorate the effects of Dandy-Walker. We believe that by making findings available to families affected in an organized and accessible way, and by disseminating the direct and indirect outcomes of translational research, we can more swiftly move the results from the bench to the bedside in an expeditious manner.
Learn more about DW
Volunteer on Race Day!!
Would you like to volunteer on the day of the race? We could certainly use you! Contact volunteer@dandy-walker.org to get more information.
Support our Efforts!
Race Location
05.19.2012
Ashburn Elementary School
44062 Fincastle Dr.
Ashburn, VA
20147
9:30 am
Packet Pickups for Registered Racers
Thursday, May 17th from 4-7 pm
Chick-Fil-A in Ashburn
(44835 Lakeview Overlook Plaza
Ashburn, VA 201471)
map it
Friday, May 18th from 4-7pm at your
Leesburg Potomac River Running store
(1601 Village Market Blvd. SE,
Unit 120, Leesburg, VA 20175)
map it
Day-of-race registration/packet pick-up will be from
8-9am at Ashburn Elementary.
Race Day & Pets 
Please note: Since this 5K and Family Fun Fest is on school grounds, pets are not permitted. We are so sorry, because we love our dogs too!
Hopefully in the future, we will be lucky enough to be able to race with our furry friends!
Did you know?
May is Dandy-Walker Awareness month in the state of Virginia!
Write a letter to your state governor to request a Dandy-Walker Awareness month in your state!.
