Welcome To the Second Annual Carter's Run for Dandy-Walker
Our first son Carter was born with Dandy-Walker Variant in 2008. To honor him and to raise awareness for Dandy-Walker,
we are holding a 5K Run/Walk and Family Fun Fest including a performance by the Great Zucchini! The funds raised will help facilitate more research studies and trials in order to combat and hopefully successfully treat Dandy-Walker Syndrome and Dandy-Walker Variant.
The Dandy-Walker Alliance
is an all-inclusive organization comprised of individuals directly and indirectly affected by Dandy-Walker sharing a collective interest in educational, informational activities and supporting non-partisan research to increase public awareness of the congenital birth defect Dandy-Walker. We support all efforts to determine the cause(s), find the cure and to ameliorate the effects of Dandy-Walker. We believe that by making findings available to families affected in an organized and accessible way, and by disseminating the direct and indirect outcomes of translational research, we can more swiftly move the results from the bench to the bedside in an expeditious manner.
Learn more about DW
Volunteer on Race Day!!
Would you like to volunteer on the day of the race? We could certainly use you! Contact email@example.com to get more information.
Ashburn Elementary School
44062 Fincastle Dr.
Ashburn, VA 20147
Friday, May 17, 4pm - 7pm
Lost Rhino Brewing Company
21730 Red Rum Drive #142
Ashburn, VA 20147
Saturday, May 18, 11am - 2pm
Potomac River Running
1601 Village Market Blvd
Leesburg, VA 20175
Day-of-race registration/packet pick-up will be from
8-9am at Ashburn Elementary.
Race Day & Pets
Please note: Since this 5K and Family Fun Fest is on school grounds, pets are not permitted. We are so sorry, because we love our dogs too! Hopefully in the future, we will be lucky enough to be able to race with our furry friends!
May is Dandy-Walker Awareness month in the state of Virginia!
Write a letter to your state governor to request a Dandy-Walker Awareness month in your state!.