Carter's Run for Dandy-Walker

About the
Dandy-Walker Alliance

The Dandy-Walker Alliance
is an all-inclusive organization comprised of individuals directly and indirectly affected by Dandy-Walker sharing a collective interest in educational, informational activities and supporting non-partisan research to increase public awareness of the congenital birth defect Dandy-Walker. We support all efforts to determine the cause(s), find the cure and to ameliorate the effects of Dandy-Walker. We believe that by making findings available to families affected in an organized and accessible way, and by disseminating the direct and indirect outcomes of translational research, we can more swiftly move the results from the bench to the bedside in an expeditious manner.

Learn more about DW

• What is Dandy-Walker Syndrome?
• Dandy-Walker in the media
• What do all those strange words mean?
• Wasn't there a movie about Dandy-Walker kids? Yes there was!
• Read a Dandy-Walker success story!

Volunteer on Race Day!!

Would you like to volunteer on the day of the race? We could certainly use you! Contact volunteer@dandy-walker.org to get more information.

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